On Tuesday, Matt and I took the boys for their consultation with a physiotherapist and occupational therapist. Both boys inherited Multiple Hereditary Exostoses, a chronic pain bone disorder that can cause issues with muscles, nerves and tendons due to the bone growths putting pressure on them by growing too large or too sharp (or in the wrong place).
I also have MHE, and as a child, I experienced a lot of struggles with my fine and gross motor skills. The bone growths would affect my balance and my mobility, and my ability to grasp and draw. I only ever had physiotherapy after certain surgeries to rework the muscles, I never did occupational therapy (which, for those of you who don’t know, focuses on the fine motor skills, such as grasping and drawing and using scissors etc).
Anyway, I want to ensure that the boys stay on top of these important abilities. Nolan’s mobility and balance have been an issue, and Archer’s fine motor skills have been a challenge. I knew that they would face more challenges down the road, as they and their bone growths grow.
So, I booked them both appointments. Archer saw the occupational therapist while Nolan saw the physiotherapist, and then they switched.
Archer scored slightly below average for occupational therapy. His fine motor skills need some attention, as he is on par with a 26 month old. The occupational therapist and I have an at home plan set up for Archer and will revisit after 6 months to see if things have improved. On physiotherapy, Archer is right on par with his age. He is busy and doesn’t appear to have any mobility issues. He will also be seen in 6 months by the physiotherapist to make sure that doesn’t change. It can, because as he grows his bone growths will grow, along with the possibility of mobility issues.
Nolan, on the other hand, has issues with his mobility and balance. The physiotherapist noticed the same tension and lack of mobility in his legs when she tried to get him to work his knees. He isn’t able to jump and balance like a kid his age should. He scored fairly well with fine motor skills, although he has issues grasping and applying pressure. At the end of May/beginning of June, we will be starting physio and occupational therapy for Nolan at the centre.
The goal is to stay on top of these issues before they are even really there. It’s easier to maintain than to relearn everything.
I’m thankful for the opportunity to be able to do that for them.